
Help Matheus Fight Centronuclear Myopathy
Help Matheus Fight Centronuclear Myopathy

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Emily Thompson is organizing this fundraiser.
My name is Emily Thompson, and I never thought I'd be here writing this, begging strangers to help me keep my son alive. Matheus was born with Centronuclear Myopathy, a rare disease that's destroying his muscles, slowly taking away his ability to move… and to breathe.
He can't walk. He can't sit. He can't speak. There's a hole in his throat — a tracheostomy — that keeps him alive. I have to clean it every day, and when I do, he cries in silence. His face twists from the pain, but no sound comes out. He's only 4 years old. He's never said "mom." But when I talk to him, he blinks. He still fights inside. He hasn't given up.
Every day is a battle. I stretch his legs so they don't freeze in place. I suction his throat so he doesn't choke on his own saliva. I feed him through a tube. I sleep beside machines that keep him alive — because if one alarm goes off and I don't hear it, I could lose him in seconds.
Doctors told me to prepare for the worst. They said there's no cure. But I won't give up. I can't. Matheus needs a cough-assist machine, therapy equipment, special nutrition, and medical transport. And we're out of money. I've sold everything we had.
Below is the real medical invoice from St. Jude Pediatric Neurology Hospital, showing what we already owe:
The total bill comes to $48,205.00. This is what we need to pay — and we have nothing left. Now, I'm here asking for help to keep my son alive. Even a few dollars can help buy the tools that keep him breathing.
He's in pain every single day — but I can see it in his eyes: he still wants to live. Please, help me save my little boy. Thank you, Emily. ❤️
Logan A.
$25 · 1 day ago
Daniel A.
$25 · 1 day ago
Lucas N.
$25 · 2 days ago
Lucia M.
$100 · 2 days ago
Laura B.
$50 · 2 days ago

Sarah W.
$25 · 2 days ago
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